Privacy Policy
Privacy Statement
The entity responsible for processing your personal data on this website is the Cystinosis Foundation. All relevant company details can be found in the Legal Notice.
The protection of your personal data is very important to us. We therefore process your data exclusively on the basis of the legal provisions (GDPR, TKG 2003). In this privacy policy, we inform you about the most important aspects of data processing within the scope of our website.
Contacting Us
If you contact us via a form on the website or by email, the data you provide will be stored for six months for the purpose of processing your request and in case of follow-up questions. We do not share this data without your consent.
Cookies
Our website uses so-called cookies. These are small text files that are stored on your device with the help of the browser. They do not cause any harm. More information about cookies. This website only uses cookies after you have agreed to their use via the OK button in the cookie information banner.
We use cookies to make our services user-friendly. Some cookies remain stored on your device until you delete them. They enable us to recognize your browser on your next visit.
If you do not wish this, you can configure your browser to inform you about the setting of cookies and to allow this only in individual cases.
Disabling cookies may limit the functionality of our website.
Cookie Consent
Storage of consent for the use of cookies.
Access Data
The website operator or hosting provider collects data about access to the site and stores these as “server log files”. The following data is logged:
- Visited website
- Time at the moment of access
- Amount of data sent in bytes
- Source/reference from which you reached the page
- Browser used
- Operating system used
- IP address used (if applicable: in anonymized form)
The data collected is used solely for statistical evaluation and for improving the website. However, the website operator reserves the right to subsequently check the server log files if there are concrete indications of unlawful use.
YouTube
Our website uses plugins from the Google-operated site YouTube. The operator of the pages is YouTube, LLC, 901 Cherry Ave., San Bruno, CA 94066, USA. When you visit one of our pages equipped with a YouTube plugin, a connection to YouTube servers is established. The YouTube server is informed which of our pages you have visited.
If you are logged into your YouTube account, you allow YouTube to assign your browsing behavior directly to your personal profile. You can prevent this by logging out of your YouTube account.
Further information on the handling of user data can be found in YouTube’s privacy policy at: https://www.google.de/intl/de/policies/privacy
Source: https://www.e-recht24.de
Your Rights
You have the right to information, correction, deletion, restriction, data portability, withdrawal, and objection. If you believe that the processing of your data violates data protection law or that your data protection rights have otherwise been violated, you can lodge a complaint with the supervisory authority. In Austria, this is the Data Protection Authority.
You can contact us at the following details
Cystinosis Foundation
Dr.-Max-Str. 21
82031 Grünwald
Phone: +49 89 4141 4408-0
Fax: +49 89 4141 4408-9
Email: Sonja.froschauer@cystinose-stiftung.de
Status: July 2019
