Webtalks in November

November 2021

Sadly we have to cancell our two webtalk in November. New dates will be published on our website and newsletter.

CANCELLED: 12.11.2021 Webtalk:MUCH MORE THAN JUST SWALLOWING – speech therapy diagnostics and advice during the cystinosis consultation hour
On November 12th, from 4:00 p.m. to 5:30 p.m., Christine Knerr will provide information about her speech therapy work as part of the cystinosis consultation hour and explain to us why it is not just about swallowing. Registrate.

CANCELLED: 26.November 2021 Webtalk: „SAVE – electronic case record for cystinosis“
On November 26th from 4:00 p.m. to 5:30 p.m. we will report on the electronic case file SAVE, which was specially developed for cystinosis patients and documentation. Sonja Froschauer, CEO of the Cystinose Foundation explains the medical necessity of an electronic case file. Dr. Sarah Wildenhain, project manager for the Cystinosis Foundation, explains the technical aspects of the case file and the IT developer of the case file, Jens Göbel from the University of Frankfurt, then shows you the technical components. Registration.