LITERACY – Training program for people with cystinosis

LITERACY is a digital educational program designed for people living with cystinosis and their families. It provides easy-to-understand, evidence-based information based on the current S3 clinical guideline, helping participants better understand the condition and manage daily life more safely.

A combination of podcasts, explanatory videos, and interactive Q&A sessions enables both self-directed learning and direct exchange with experts. The program content covers a wide range of topics and is based on a comprehensive needs assessment conducted among individuals affected by cystinosis and their families.

The podcasts are available on all major platforms (including Spotify, Apple Podcasts, and Amazon Music/Audible) or can be accessed together with our explanatory videos here: